What is an Ependymoma Brain Tumor? Is it linked to Testosterone Cypionate?

What is an Ependymoma Brain Tumor? Is it linked to Testosterone Cypionate?

After reading my last article about my recent brain tumor diagnosis, some of our readers ask what exactly an Ependymoma is. It’s no surprise that the name isn’t familiar. This particular type of tumor accounts for less than 2% off all brain tumors. It’s also generally found in children and rarely in adults. An ependymoma is a primary tumor, which means that it usually starts in either the brain or spine. The brain and spine are part of the central nervous system.

Your brain contains different types of cells and Ependymomas form from precursor cells to the ependymal cells. These cells line the “rivers” of your brain or what are called the ventricles.

This type of tumor can occur anywhere in the central nervous system, including the brain and the spinal cord. In my case, the tumor is located deep within the “4th ventricle.” The ventricles of the brain are a communicating network of cavities filled with cerebrospinal fluid. In the side view image above, you’ll notice a section that looks a bit like cauliflower, that’s the cerebellum. My tumor is just to the left.

One commenter had asked if there is any link between Testosterone Cypionate and Ependymomas. While the cause for brain tumors are generally unknown, it’s highly  unlikely that Testosterone Cypionate lead to this particular mass. These tumors are slow growing and mine is thought to have been around before I ever started TRT.  Interestingly enough, I had written in an earlier article that I often felt sleepiness even if my estrogen was high. This is unusual and led to confusion among commenters who asked why my symptoms countered the usual high vs low estrogen symptoms (admittedly even I had wondered! Curiously though, Arimidex had always made me feel better during the time I used it). It’s likey my tumor may have been the cause.

At some point in time, surgery is likely going to be required. But, survival rate is high. All the more reason that I continue forward with a healthy and active lifestyle. My body will need that energy and dedication now more than ever. Rest assured however, I can speak with confidence that TRT was not the resulting cause of my small, uninvited ependymoma.


2 Comments

  • Danny yates Posted October 5, 2017 3:04 pm

    James, thank you for your blog!! I just found out I have a ependoma tumor in the 4th ventricle and would like to discuss with you to see what you have learned. This has really scared me and I am trying to get all of the knowledges about these tumors so I can be better informed. Please let me know the latest. Thanks Danny

    • James Posted October 5, 2017 3:10 pm

      Hey Danny! I’m sorry to hear about your recent diagnosis. Finding out you have an Ependymoma can lead to some dark moments in your life and at the very least some serious reflection. The lack of understanding can really make you feel uneasy. Let me know if you’d like me to email you directly and I’d be more than happy to chat.

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